Families in the News
DBA Dad shares his daughter’s story in published book: “Saving Katie – A Father’s Story”
Congratulations to DBA Dad, Steve Trebing, on the publication of his book “Saving Katie – A Father’s Story”, which has been released on Amazon. In this memoir, Steve recounts his…
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14-year-old teen, Hallie Barnard, was gifted free front-row tickets to the Taylor Swift concert by a family who donated them to MD Anderson Cancer Center. When asked about Taylor Swift,…
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Ahwatukee Family Feels Blood Shortage Uncertainty
If you are able to donate blood, please consider saving a life… or three! Those on the receiving end of your selfless gift appreciate and need you. Many of our…
Read MorePowerful Song by Maria Mohn, DBA Mom
Maria Mohn is a Norwegian musician, pianist, and singer-songwriter; she is also a DBA mom. This powerful song was written when her son was in the hospital.
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Austin Jackson Saved His Sister’s Life a Year Before Becoming a Dolphins 1st-round Pick
Heartfelt CONGRATULATIONS to Austin Jackson and his entire family! The DBA Community celebrates all the joyous successes and accomplishments of this DBA family. So much to be grateful for! https://www.sbnation.com/…/austin-jackson-nfl-draft…
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Dowies Full of Hope after DBA Camp
The Diamond Blackfan Anemia Foundation hosts a family meeting every other year at Camp Sunshine at Sebago Lake. The information, friendship, and support have proven to be life-changing and life-saving.…
Read MoreHallie’s Heroes… Shake It Off
It’s FINALLY HERE!! Hallie’s Heroes and DKMS US present, Hallie Bea! Watch #TeamHallieBea Shake It Off to raise awareness for Diamond Blackfan Anemia and the need for more people to…
Read MoreWatch Our Favorite Tiny Dancer Perform the Nutcracker with the New York City Ballet
Here are a few of our favorite things! Our favorite dew drop – Audrey Our favorite television personality – Rachael Ray Our favorite ballet – “The Nutcracker” performed by the…
Read MoreAudrey Nethery in Upcoming Music Video “Life’s Beautiful”
So BEAUTIFUL… a must see. Grammy Award Winner Steven Battey, founder of Singing for Superheroes, joins Audrey to spread a message of hope with “Life’s Beautiful” music video this holiday…
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Teen With Blood Disorder Reunites With Family Dogs After Spending a Year in Hospital
A heartwarming story about a teen with DBA – the amazing, strong, sweet, sassy, inspirational Emmy, and her incredible mom and family. Keep up the great work, Emmy https://gma.yahoo.com/teen-blood-disorder-reunites-family…
Read MoreGlobal Genes Announces Actors, Pop Stars, and Special Performances For the Fifth Annual Tribute to Champions of Hope
Audrey and Diamond Blackfan Anemia are headliners at this year’s 5th Annual Tribute to Champions of Hope! Shine on, Audrey, Shine on! http://www.prnewswire.com/…/global-genes-announces…
Read More“Life with DBA” by Laurie Shore, DBA speaker at the 14th DBA International Consensus Conference
When I was diagnosed with Diamond Blackfan Anemia back in 1970, I was lucky enough to have a doctor that knew about DBA and knew what he was dealing with. I…
Read MoreWelcome and thank you. Christopher Vroman’s Story shared at the 14th DBA International Consensus Conference
It means more than you could ever imagine to myself, my brother and to the rest of my family that you have come here to collaborate with great minds in…
Read MoreSelena Gomez Adorably Dances With 7-Year-Old Audrey Nethery, Who is Battling Rare Disease
Audrey and Selena – We love you both like a love song, baby! http://www.etonline.com/…/191737_selena_gomez_adorably…/
Read MoreAudrey Nethery on Rachel Ray
With thanks to Audrey’s dad, here is the entire segment of two of our favorite young ladies… Audrey and Rachael. Thank you Audrey for your indomitable spirit and for making…
Read MoreDBAF Board Member Appointed As Reviewer
Congress has again made funds available to the Department of Defense (DOD) for the Bone Marrow Failure Research Program (BMFRP). The DOD, in turn, is making funds available to scientists…
Read MoreDr. Jeffrey Lipton Honored at National Cancer Center’s 60th Anniversary Gala and Nobility in Science Award Presentation
Please join us in congratulating one of DBA’s true heroes, Jeffrey M. Lipton, MD, PhD, Director, Hematology/Oncology and Stem Cell Transplantation at Cohen Children’s Medical Center of New York. On…
Read MoreAs part of the annual April Fool’s pancake breakfast at Tremont Center on Saturday, businesses and residents will be helping out a serious cause — helping to fund a bone-marrow…
Read MoreStrongsville Teen Lives with Rare Disease.
Strongsville Patch. August 29,2011, by Gina Ragone. Click here to read the full article.
Read MoreMystery Diagnosis – Kylie Monica’s Miracle
Oprah Winfrey Network. Thank you Monicas for sharing your story and helping to spread the word about DBA!
Read MoreBoy with Rare Disease Inspires Donations of Blood and Kids’ Band-Aids. Liam Gorman, 6, Shows the Importance of Blood Drives and Cool Band Aids.
By MIKAELA CONLEY, ABC News Medical Unit. Six-year-old Liam Gorman inspired others to give colorful band aids and blood to help kids in need. Liam and his parents were overwhelmed…
Read More‘Freezin’ for a Reason’
The Item, The Banner. Click here to read the full article.
Read MoreWCSH6 News. Portland, Maine. Click here to read the full article.
Read MoreYoung fundraiser dedicated to funding cure
By Ken Cleveland. The Item. Click here to read the full article.
Read MoreSomething quite rare and remarkable in Big Sky Country
By Betty Londergan. What Gives 365. Click here to read the full article.
Read MoreBlood Drive for Deliah
By Michael Moore. Missoulian Click here to read the full article.
Read MoreDelivering hope: Lauren has a rare genetic disease. On Friday, she welcomed a new sister whose cord blood could cure her. But it isn’t that simple.
We are happy to share with you our DBA Family’s personal story. Please note the medical information may not be entirely accurate and should not be used for diagnosis or…
Read MoreBoy with rare disease inspires blood donors
By Arlene Gross. North Shore of Long Island – Times Beacon Record.
Read MoreBy Scott Nethery. Click here to read the full article.
Read MoreTenacious toddler owes smile to donors.
Adelaide Advertiser, General News, Page 3. Click here to read the full article.
Read MoreA Tattoo of Pride and Hope
Our logo never looked so beautiful!! Shelly Marquer, an adult DBA patient with a real fear of needles, proudly and triumphantly displays her new tattoo. If you look closely, you…
Read MoreCongratulations to the Bell Family for being selected for ABC’s Extreme Makeover: Home Edition
Tucson, AZ – originally aired March 22nd 8:00pm. The episode is still available to watch online at http://abc.go.com/primetime/xtremehome On January 27, 2009, American Red Cross hero Lizzie Bell and her…
Read MoreColorado State University News Click here to read the full story.
Read MoreHospital hosts surprise blood drive
Queens Courier, By Jessica Lyons Read the full article here.
Read MoreMaggie’s Story
Click here to watch the video.
Read MoreBlood drive to honor child; 5-year-old living with rare disorder.
By Priyanka Dayal TELEGRAM & GAZETTE STAFF Click here to read the full article.
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