Though in our hearts we desire to be free from DBA, we have learned patience, love, trust, perseverance, compassion, courage, and to cry.
After finally getting the right diagnosis, Samnang is surviving and thriving in Cambodia.
Some days are good, others not so good. Please help find a cure for our family.
Thankfully, our sweet girl functions very well with a low blood count. We couldn’t feel more blessed. There is hope!
With out the DBAF I would not be connected to others that have Diamond Blackfan Anemia. The DBAF has saved my life by educating me on what I need to do to combat this rare illness.
As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.
No comments yet. You should be kind and add one!
By submitting a comment you grant Diamond Blackfan Anemia Foundation, Inc. a perpetual license to reproduce your words and name/web site in attribution. Inappropriate and irrelevant comments will be removed at an admin’s discretion. Your email is used for verification purposes only, it will never be shared.