The DBAF has been a life saver for us! They’ve supplied us with the knowledge and the resources to fight off anything DBA might throw at us.
Living with DBA is the hardest, yet most fulfilling, aspect of our lives. Audrey is the absolute love of our lives and we are thankful everyday for her.
With something so rare, our biggest fear was that our son would battle DBA alone, he never does. Thank you DBA Foundation!
We hope for an easier life, until then we are grateful for each day together.
This is Jamie…Jamie is 7 years old, from the U.K… and he has DBA…. he’s brave, he’s strong, and above all, he’s always smiling.
Some days are good, others not so good. Please help find a cure for our family.
DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.
I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey
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