WCSH6 News. Portland, Maine.
Families of children with rare blood disorder find hope at Camp Sunshine
Posted on: July 16, 2010
Categories: Families in the News
Living everyday to fight DBA
News & Events
Seth – 4 years
Though in our hearts we desire to be free from DBA, we have learned patience, love, trust, perseverance, compassion, courage, and to cry.
Dean – 11 years
DBA is hard but it’s my child’s life. I have to teach him how to live life with it. I will advocate and help find a cure. The DBAF is helping us improve his life.
McKindree – 14 years
And when the storm is over, you won’t remember how you made it through or how you managed to survive. You won’t even be sure, in fact, whether the storm is really over. BUT…one thing is certain: When you come out of the storm, you won’t be the same person who walked in!
James Thomas – 3 years
Never give up on something that you can’t go a day without thinking about.
Natalie – 9 years
I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey
Lane – 12 years
Same journey, different paths. Bound together by the same heartaches, triumphs, and hope for a cure. That’s DBA Family!
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