Where to Get Support
The DBA Foundation encourages families and individuals with DBA syndrome to connect with us and learn more about how we can assist you. We welcome your calls and/or emails. Whether you are newly diagnosed or have been dealing with DBA for a long time, please contact us. We’d love to hear from you! Dawn Baumgardner can be reached at 1-716-674-2818 (Eastern time) or by emailing DBAF@dbafoundation.org.
www.facebook.com
To “Like” the Diamond Blackfan Anemia Foundation on Facebook click here.
To join “DBA Family Group” on Facebook click here.
http://twitter.com/DBAFoundation
Do you tweet? If so, follow us and keep up to date on Diamond Blackfan Anemia tweets.
CaringBridge
www.caringbridge.org
This is a site for free, personalized websites that support and connect loved ones during critical illness, treatment, and recovery. You can read about others and their stories and/or create your own site.
Camp Sunshine
www.campsunshine.org
Camp Sunshine provides respite, support, joy, and hope to children with life-threatening illnesses and their immediate families through various stages of a child’s illness. The year-round program is free of charge to all families and includes 24-hour onsite medical and psychosocial support. Main Number: 1-207-655-3800 (Eastern Time)
For more support options, see the Resources page.