We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?
Sometimes I feel like the odd one out, restricted by DBA. I just have to keep reminding myself that God wouldn’t bless me with this challenge if He didn’t think I could handle it. I don’t let DBA define me, I try to defy DBA.
Living with DBA is challenging and confusing at times but with the DBAF by your side their information and guidance is PRICELESS.
This DBA family is the greatest group of people that I never wanted to have to know, but blessed that I do. The support from the DBA Foundation is immeasurable.
We are not the first to say this and we will not be the last, the DBAF has saved our child’s life. I cringe at the thought of what her care would be had we not met the DBAF.
Future ribosomal protein researcher…he just doesn’t know it yet.
Nobody is guaranteed tomorrow. Just because you have a warning doesn’t make you different than anyone else. It doesn’t make a difference in how you live each day.
As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.
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