Oprah Winfrey Network. Thank you Monicas for sharing your story and helping to spread the word about DBA!
This is Jamie…Jamie is 7 years old, from the U.K… and he has DBA…. he’s brave, he’s strong, and above all, he’s always smiling.
And when the storm is over, you won’t remember how you made it through or how you managed to survive. You won’t even be sure, in fact, whether the storm is really over. BUT…one thing is certain: When you come out of the storm, you won’t be the same person who walked in!
Having twin boys with DBA makes you appreciate everything in life more on a daily basis.
With out the DBAF I would not be connected to others that have Diamond Blackfan Anemia. The DBAF has saved my life by educating me on what I need to do to combat this rare illness.
Some days are good, others not so good. Please help find a cure for our family.
While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.
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