Oprah Winfrey Network. Thank you Monicas for sharing your story and helping to spread the word about DBA!
DBA is a part of who I am… it does not define me nor will it stand in the way of my hopes and dreams.
This is David at 1 month old weighing almost 2 pounds. DBA changed our paths in life, but I will ALWAYS be there to hold his hand for he holds my heart.
Same journey, different paths. Bound together by the same heartaches, triumphs, and hope for a cure. That’s DBA Family!
After finally getting the right diagnosis, Samnang is surviving and thriving in Cambodia.
We hope for an easier life, until then we are grateful for each day together.
While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.
I am and always will be special. I am and always will be DBA Strong!
Nobody is guaranteed tomorrow. Just because you have a warning doesn’t make you different than anyone else. It doesn’t make a difference in how you live each day.
No comments yet. You should be kind and add one!
By submitting a comment you grant Diamond Blackfan Anemia Foundation, Inc. a perpetual license to reproduce your words and name/web site in attribution. Inappropriate and irrelevant comments will be removed at an admin’s discretion. Your email is used for verification purposes only, it will never be shared.