We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?
Tag Archives: Boston Children’s Hospital
Clinical Trial Opportunity
We are pleased to share and update information regarding the clinical trial entitled, “Phase I/II, Open-Label Study to Determine Safety of Trifluoperazine (TFP) in Adults with Red Blood Cell Transfusion-Dependent Diamond Blackfan Anemia.” The Feinstein Institutes for Medical Research and Cohen Children’s Medical Center in NYC Announce the Addition of Boston Children’s Hospital as a Study Center for the Clinical Continue Reading »
A Clinician/Researcher’s Perspective… Camp Sunshine 2015
By Vijay G. Sankaran, M.D., Ph.D. As both a pediatric hematologist caring for patients with blood disorders and a scientist working to improve our understanding of the genetic basis of these diseases, I spend a large fraction of my time thinking about Diamond Blackfan anemia (DBA). However, while I have always found DBA to be a fascinating disease to study Continue Reading »
DBAF Funds Another Research Project
The Diamond Blackfan Anemia Foundation is proud to support the very important work of Vijay G. Sankaran, M.D., Ph.D. of Boston Children’s Hospital. The DBAF has provided $36,000 to fund Dr. Sankaran’s research project entitled, Defining GATA1 Transcriptional Alterations in Diamond-Blackfan Anemia. In addition to his clinical responsibilities, Dr. Sankaran is an outstanding investigator and was a leader in the Continue Reading »
DBAF Funds New Research
The Diamond Blackfan Anemia Foundation is pleased to announce the funding of another exciting research project. A grant for $35,000 was awarded to Daniel Finley, Ph.D. for his project entitled, “A new mode of ribosome regulation specific to reticulocytes.” Dr. Daniel Finley, a well-established investigator and a professor at Harvard University, is new to the DBA field. He will be Continue Reading »
