About the DBA Foundation

Fighting to Find the Cause and Cure for Diamond Blackfan Anemia

The Diamond Blackfan Anemia Foundation, Inc. (DBAF), founded in 1994, has adopted the following mission statement: “to advance research initiatives that promote a better understanding, therapeutic strategies and a cure for this rare bone marrow failure syndrome. We are dedicated to patient advocacy and providing support and education services to individuals, families and medical professionals resulting in improvements in the diagnosis, clinical treatment and management of the disorder, while enhancing the quality of life of affected families worldwide.”

The DBAF is a 501(c)(3) not-for-profit corporation registered with the Charities Bureau of New York State Department of Law, 120 Broadway, New York, New York 10271.

The DBAF funds medical research projects which directly or indirectly benefit DBA patients and which are approved by the DBAF’s medical/scientific advisory board comprised of medical doctors and scientists. The DBAF organizes meetings which bring together DBA patients, families, and world-renowned physicians. The DBAF provides informational literature to patients, DBA family members, health care professionals and other interested parties. The DBAF networks DBA families throughout the United States, Canada, and worldwide. The DBAF publishes a monthly e-newsletter containing personal DBA stories, DBA clinical trial information, current research, and DBA activities.

Click to view a copy of the DBAF’s 2013 IRS 990 Form 2013 Financial Statement
Click to view copies of the DBAF’s Whistleblower Protection PolicyDocument Retention and Destruction Policy Conflict of Interest Policy

For additional information on DBA or the DBAF, please contact:

Diamond Blackfan Anemia Foundation, Inc.
P.O. Box 1092
West Seneca, New York 14224
Phone: 1-716-674-2818 (Eastern Time)