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for patients…for families…for research

It is because of these faces and hundreds more unseen, in collaboration with the dedication, hard work, and the love of all our DBA families that we continue to exist. It is because of our passion to ensure our loved ones a better life that we remain solidly committed to our mission.

Dawn. M. Baumgardner
Executive Director

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Spotlight Story

Clinical Trial Opportunity

We are pleased to share and update information regarding the clinical trial entitled, “Phase I/II, Open-Label Study to Determine Safety of Trifluoperazine (TFP) in Adults with Red Blood Cell Transfusion-Dependent Diamond Blackfan Anemia.”
The Feinstein Institutes for Medical Research and Cohen Children’s Medical Center in NYC Announce the Addition of Boston Children’s Hospital as a Study Center for the Clinical Trial of Trifluoperazine for Transfusion-Dependent Adult Patients with Diamond Blackfan Anemia. For more details, please read this document: TFP Study Announcement

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