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for patients…for families…for research

It is because of these faces and hundreds more unseen, in collaboration with the dedication, hard work, and the love of all our DBA families that we continue to exist. It is because of our passion to ensure our loved ones a better life that we remain solidly committed to our mission.

Dawn. M. Baumgardner
Executive Director

Family Resources Research Resources

Spotlight Story

New Information & Recommendation Regarding Increased Cancer Risks

In June 2021, a “Special Report” entitled, Colorectal cancer screening and surveillance strategy for patients with Diamond Blackfan anemia: Preliminary recommendations from the Diamond Blackfan Anemia Registry was published in Pediatric Blood & Cancer.
At this time, the abstract is available for free and full access to the article is available only through paid subscriptions or institutional access. In addition to the abstract, the Diamond Blackfan Anemia Registry doctors have provided a letter outlining the key points of the “Special Report.”
To read this important letter, Please click the link: Colonoscopy …

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