We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?
Living with DBA is the hardest, yet most fulfilling, aspect of our lives. Audrey is the absolute love of our lives and we are thankful everyday for her.
The DBAF has been a life saver for us! They’ve supplied us with the knowledge and the resources to fight off anything DBA might throw at us.
We hope for an easier life, until then we are grateful for each day together.
DBA has forever changed our lives, but we will persevere until we find a cure.
This DBA family is the greatest group of people that I never wanted to have to know, but blessed that I do. The support from the DBA Foundation is immeasurable.
It has been seven years since DBA became part of our vocabulary. Our son’s diagnosis brought confusion, apprehension and despair. The discovery of DBAF is a stroke of serendipity. While even more tears were shed, these are now mingled with knowledge, understanding and, more significantly, hope. It will be through research that our son will be able to secure a brighter future.
I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey
With something so rare, our biggest fear was that our son would battle DBA alone, he never does. Thank you DBA Foundation!
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