Though in our hearts we desire to be free from DBA, we have learned patience, love, trust, perseverance, compassion, courage, and to cry.
Lily loves everyday she has, especially the ones she’s not in the hospital. Lily is the strongest little girl I know, my hero.
Having twin boys with DBA makes you appreciate everything in life more on a daily basis.
I stand DBA Strong with the help of my family, friends, and DBA friends.
Of all the people on earth, the Lord your God has chosen you to be his own special treasure. -Deuteronomy 7:6
Nobody is guaranteed tomorrow. Just because you have a warning doesn’t make you different than anyone else. It doesn’t make a difference in how you live each day.
It is the tough things I have gone through with DBA that has made me the man I am.
With out the DBAF I would not be connected to others that have Diamond Blackfan Anemia. The DBAF has saved my life by educating me on what I need to do to combat this rare illness.
DBA is hard but it’s my child’s life. I have to teach him how to live life with it. I will advocate and help find a cure. The DBAF is helping us improve his life.
DBA has forever changed our lives, but we will persevere until we find a cure.
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