We are not the first to say this and we will not be the last, the DBAF has saved our child’s life. I cringe at the thought of what her care would be had we not met the DBAF.
Keegan – 2 years
Katie – 3 years
Our little hero
Maggie – 4 years
It’s not fun, but I am a tough cookie.
Carole – 16 years
Sometimes I feel like the odd one out, restricted by DBA. I just have to keep reminding myself that God wouldn’t bless me with this challenge if He didn’t think I could handle it. I don’t let DBA define me, I try to defy DBA.
Dawson – 2 years
He’s living on borrowed blood and we take one day at a time.
Jack – 3 years
DBA has forever changed our lives, but we will persevere until we find a cure.
Irelynn – 2 years
For Research, For Hope – Commited to helping find a cure for Diamond Blackfan Anemia – Give life, Donate blood.
James Thomas – 3 years
Never give up on something that you can’t go a day without thinking about.
Sarah – 33 years
Natalie – 9 years
I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey