Thankfully, our sweet girl functions very well with a low blood count. We couldn’t feel more blessed. There is hope!
The DBAF has been a life saver for us! They’ve supplied us with the knowledge and the resources to fight off anything DBA might throw at us.
Sometimes I feel like the odd one out, restricted by DBA. I just have to keep reminding myself that God wouldn’t bless me with this challenge if He didn’t think I could handle it. I don’t let DBA define me, I try to defy DBA.
This is Jamie…Jamie is 7 years old, from the U.K… and he has DBA…. he’s brave, he’s strong, and above all, he’s always smiling.
DBA has forever changed our lives, but we will persevere until we find a cure.
For me, DBA has blocked the path to my goal. To get there, I’ll have to fight it and one day, I will reach that goal because I didn’t give up!
Having twin boys with DBA makes you appreciate everything in life more on a daily basis.
I am and always will be special. I am and always will be DBA Strong!
We are not the first to say this and we will not be the last, the DBAF has saved our child’s life. I cringe at the thought of what her care would be had we not met the DBAF.
No comments yet. You should be kind and add one!
By submitting a comment you grant Diamond Blackfan Anemia Foundation, Inc. a perpetual license to reproduce your words and name/web site in attribution. Inappropriate and irrelevant comments will be removed at an admin’s discretion. Your email is used for verification purposes only, it will never be shared.