As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.
DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.
Having DBA has taught me to not give up the fight and to do the best that I can. The DBAF has become more than just a source of friends and knowledge, but a family of support through the bad and the good.