With something so rare, our biggest fear was that our son would battle DBA alone, he never does. Thank you DBA Foundation!
Though in our hearts we desire to be free from DBA, we have learned patience, love, trust, perseverance, compassion, courage, and to cry.
Thank you DBAF for being there for us as we continue on this journey.
With out the DBAF I would not be connected to others that have Diamond Blackfan Anemia. The DBAF has saved my life by educating me on what I need to do to combat this rare illness.
Living with DBA is the hardest, yet most fulfilling, aspect of our lives. Audrey is the absolute love of our lives and we are thankful everyday for her.
I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey
After finally getting the right diagnosis, Samnang is surviving and thriving in Cambodia.
Of all the people on earth, the Lord your God has chosen you to be his own special treasure. -Deuteronomy 7:6
Future ribosomal protein researcher…he just doesn’t know it yet.
Lily loves everyday she has, especially the ones she’s not in the hospital. Lily is the strongest little girl I know, my hero.
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