With something so rare, our biggest fear was that our son would battle DBA alone, he never does. Thank you DBA Foundation!
Never give up on something that you can’t go a day without thinking about.
The DBAF has been a life saver for us! They’ve supplied us with the knowledge and the resources to fight off anything DBA might throw at us.
DBA is hard but it’s my child’s life. I have to teach him how to live life with it. I will advocate and help find a cure. The DBAF is helping us improve his life.
This is Jamie…Jamie is 7 years old, from the U.K… and he has DBA…. he’s brave, he’s strong, and above all, he’s always smiling.
We are not the first to say this and we will not be the last, the DBAF has saved our child’s life. I cringe at the thought of what her care would be had we not met the DBAF.
As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.
Having twin boys with DBA makes you appreciate everything in life more on a daily basis.
And when the storm is over, you won’t remember how you made it through or how you managed to survive. You won’t even be sure, in fact, whether the storm is really over. BUT…one thing is certain: When you come out of the storm, you won’t be the same person who walked in!
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