With something so rare, our biggest fear was that our son would battle DBA alone, he never does. Thank you DBA Foundation!
Some days are good, others not so good. Please help find a cure for our family.
Thank you DBAF for being there for us as we continue on this journey.
As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.
DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.
This is Jamie…Jamie is 7 years old, from the U.K… and he has DBA…. he’s brave, he’s strong, and above all, he’s always smiling.
Having DBA has taught me to not give up the fight and to do the best that I can. The DBAF has become more than just a source of friends and knowledge, but a family of support through the bad and the good.
Having twin boys with DBA makes you appreciate everything in life more on a daily basis.
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