Having twin boys with DBA makes you appreciate everything in life more on a daily basis.
With something so rare, our biggest fear was that our son would battle DBA alone, he never does. Thank you DBA Foundation!
Nobody is guaranteed tomorrow. Just because you have a warning doesn’t make you different than anyone else. It doesn’t make a difference in how you live each day.
DBA has taught us many things – Never give up – Be grateful for the strength to fight the fight and always cherish the arms we rest upon for support.
Thankfully, our sweet girl functions very well with a low blood count. We couldn’t feel more blessed. There is hope!
Thank you DBAF for being there for us as we continue on this journey.
We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?
DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.
While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.
Some days are good, others not so good. Please help find a cure for our family.
No comments yet. You should be kind and add one!
By submitting a comment you grant Diamond Blackfan Anemia Foundation, Inc. a perpetual license to reproduce your words and name/web site in attribution. Inappropriate and irrelevant comments will be removed at an admin’s discretion. Your email is used for verification purposes only, it will never be shared.