Same journey, different paths. Bound together by the same heartaches, triumphs, and hope for a cure. That’s DBA Family!
DBA is hard but it’s my child’s life. I have to teach him how to live life with it. I will advocate and help find a cure. The DBAF is helping us improve his life.
Thankfully, our sweet girl functions very well with a low blood count. We couldn’t feel more blessed. There is hope!
Though in our hearts we desire to be free from DBA, we have learned patience, love, trust, perseverance, compassion, courage, and to cry.
As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.
We hope for an easier life, until then we are grateful for each day together.
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