Having DBA has taught me to not give up the fight and to do the best that I can. The DBAF has become more than just a source of friends and knowledge, but a family of support through the bad and the good.
Nobody is guaranteed tomorrow. Just because you have a warning doesn’t make you different than anyone else. It doesn’t make a difference in how you live each day.
This is Jamie…Jamie is 7 years old, from the U.K… and he has DBA…. he’s brave, he’s strong, and above all, he’s always smiling.
Good things come in small packages! I may be little, but I’m a fighter – DBA… no contest.
DBA is hard but it’s my child’s life. I have to teach him how to live life with it. I will advocate and help find a cure. The DBAF is helping us improve his life.
Thank you DBAF for being there for us as we continue on this journey.
Never give up on something that you can’t go a day without thinking about.
I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey
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