Future ribosomal protein researcher…he just doesn’t know it yet.

I will not let DBA define me, I will let it strengthen me.

We hope for an easier life, until then we are grateful for each day together.

I cheer for a cure for DBA!

DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.

I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey

“Out of difficulties grow miracles.” – Jean de La Breyere

DBA has taught us many things – Never give up – Be grateful for the strength to fight the fight and always cherish the arms we rest upon for support.