Living with DBA is challenging and confusing at times but with the DBAF by your side their information and guidance is PRICELESS.
As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.
After finally getting the right diagnosis, Samnang is surviving and thriving in Cambodia.
Never give up on something that you can’t go a day without thinking about.
I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey
This is Jamie…Jamie is 7 years old, from the U.K… and he has DBA…. he’s brave, he’s strong, and above all, he’s always smiling.
Future ribosomal protein researcher…he just doesn’t know it yet.
Thankfully, our sweet girl functions very well with a low blood count. We couldn’t feel more blessed. There is hope!
It is the tough things I have gone through with DBA that has made me the man I am.
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