Some days are good, others not so good. Please help find a cure for our family.
Gary & Zac – 30 years, 5 years
Posted on: December 7, 2012
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It’s not fun, but I am a tough cookie.
McKindree – 14 years
And when the storm is over, you won’t remember how you made it through or how you managed to survive. You won’t even be sure, in fact, whether the storm is really over. BUT…one thing is certain: When you come out of the storm, you won’t be the same person who walked in!
Cole – 2 years
While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.
Nathaniel – 7 years
With something so rare, our biggest fear was that our son would battle DBA alone, he never does. Thank you DBA Foundation!
Kendra – 34 years
With out the DBAF I would not be connected to others that have Diamond Blackfan Anemia. The DBAF has saved my life by educating me on what I need to do to combat this rare illness.
Natalie – 9 years
I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey
James Thomas – 3 years
Never give up on something that you can’t go a day without thinking about.
Nicholas – 18 years
DBA has taught us many things – Never give up – Be grateful for the strength to fight the fight and always cherish the arms we rest upon for support.
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