Living with DBA has had its ups and downs, but with all the love and support we have gotten from our family and friends, we have been able to provide our daughter with the best life possible.
While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.
As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.
For me, DBA has blocked the path to my goal. To get there, I’ll have to fight it and one day, I will reach that goal because I didn’t give up!
We are not the first to say this and we will not be the last, the DBAF has saved our child’s life. I cringe at the thought of what her care would be had we not met the DBAF.
Living with DBA is challenging and confusing at times but with the DBAF by your side their information and guidance is PRICELESS.
With something so rare, our biggest fear was that our son would battle DBA alone, he never does. Thank you DBA Foundation!
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