As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.
Living with DBA is challenging and confusing at times but with the DBAF by your side their information and guidance is PRICELESS.
Though in our hearts we desire to be free from DBA, we have learned patience, love, trust, perseverance, compassion, courage, and to cry.
Lily loves everyday she has, especially the ones she’s not in the hospital. Lily is the strongest little girl I know, my hero.
With something so rare, our biggest fear was that our son would battle DBA alone, he never does. Thank you DBA Foundation!
DBA has forever changed our lives, but we will persevere until we find a cure.
For Research, For Hope – Commited to helping find a cure for Diamond Blackfan Anemia – Give life, Donate blood.
“We are only as strong as we are united, as weak as we are divided.” – JK Rowling
Please come together and help find a cure for DBA.
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