This is David at 1 month old weighing almost 2 pounds. DBA changed our paths in life, but I will ALWAYS be there to hold his hand for he holds my heart.
Alexandre – 9 months
Avari – 22 months
Thank you DBAF for being there for us as we continue on this journey.
YouKai (Stephen) – 5 years
We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?
Cole – 2 years
While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.
Grace – 8 years
“We are only as strong as we are united, as weak as we are divided.” – JK Rowling
Please come together and help find a cure for DBA.
Elton – 2 years
As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.
Natalie – 9 years
I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey
Irelynn – 2 years
For Research, For Hope – Commited to helping find a cure for Diamond Blackfan Anemia – Give life, Donate blood.
Peyton – 6 years
I cheer for a cure for DBA!
Seth – 4 years
Though in our hearts we desire to be free from DBA, we have learned patience, love, trust, perseverance, compassion, courage, and to cry.