After finally getting the right diagnosis, Samnang is surviving and thriving in Cambodia.

For me, DBA has blocked the path to my goal. To get there, I’ll have to fight it and one day, I will reach that goal because I didn’t give up!

Our greatest inspiration!

Future ribosomal protein researcher…he just doesn’t know it yet.

Lily loves everyday she has, especially the ones she’s not in the hospital. Lily is the strongest little girl I know, my hero.

Having twin boys with DBA makes you appreciate everything in life more on a daily basis.

“We are only as strong as we are united, as weak as we are divided.” – JK Rowling
Please come together and help find a cure for DBA.

We hope for an easier life, until then we are grateful for each day together.

He’s living on borrowed blood and we take one day at a time.

Having DBA has taught me to not give up the fight and to do the best that I can. The DBAF has become more than just a source of friends and knowledge, but a family of support through the bad and the good.