DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.
Never give up on something that you can’t go a day without thinking about.
It is the tough things I have gone through with DBA that has made me the man I am.
Future ribosomal protein researcher…he just doesn’t know it yet.
While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.
With something so rare, our biggest fear was that our son would battle DBA alone, he never does. Thank you DBA Foundation!
DBA has forever changed our lives, but we will persevere until we find a cure.
Lily loves everyday she has, especially the ones she’s not in the hospital. Lily is the strongest little girl I know, my hero.
It has been seven years since DBA became part of our vocabulary. Our son’s diagnosis brought confusion, apprehension and despair. The discovery of DBAF is a stroke of serendipity. While even more tears were shed, these are now mingled with knowledge, understanding and, more significantly, hope. It will be through research that our son will be able to secure a brighter future.
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