DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.
Having twin boys with DBA makes you appreciate everything in life more on a daily basis.
Never give up on something that you can’t go a day without thinking about.
It has been seven years since DBA became part of our vocabulary. Our son’s diagnosis brought confusion, apprehension and despair. The discovery of DBAF is a stroke of serendipity. While even more tears were shed, these are now mingled with knowledge, understanding and, more significantly, hope. It will be through research that our son will be able to secure a brighter future.
This is Jamie…Jamie is 7 years old, from the U.K… and he has DBA…. he’s brave, he’s strong, and above all, he’s always smiling.
Good things come in small packages! I may be little, but I’m a fighter – DBA… no contest.
Future ribosomal protein researcher…he just doesn’t know it yet.
Difficulties are meant to rouse, not discourage. The human spirit is to grow strong by conflict. – William E. Channing
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