I am and always will be special. I am and always will be DBA Strong!
And when the storm is over, you won’t remember how you made it through or how you managed to survive. You won’t even be sure, in fact, whether the storm is really over. BUT…one thing is certain: When you come out of the storm, you won’t be the same person who walked in!
Having twin boys with DBA makes you appreciate everything in life more on a daily basis.
Thankfully, our sweet girl functions very well with a low blood count. We couldn’t feel more blessed. There is hope!
With something so rare, our biggest fear was that our son would battle DBA alone, he never does. Thank you DBA Foundation!
Though in our hearts we desire to be free from DBA, we have learned patience, love, trust, perseverance, compassion, courage, and to cry.
While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.
DBA is hard but it’s my child’s life. I have to teach him how to live life with it. I will advocate and help find a cure. The DBAF is helping us improve his life.
Lily loves everyday she has, especially the ones she’s not in the hospital. Lily is the strongest little girl I know, my hero.
With out the DBAF I would not be connected to others that have Diamond Blackfan Anemia. The DBAF has saved my life by educating me on what I need to do to combat this rare illness.
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