Of all the people on earth, the Lord your God has chosen you to be his own special treasure. -Deuteronomy 7:6
Thank you DBAF for being there for us as we continue on this journey.
Difficulties are meant to rouse, not discourage. The human spirit is to grow strong by conflict. – William E. Channing
Lily loves everyday she has, especially the ones she’s not in the hospital. Lily is the strongest little girl I know, my hero.
DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.
As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.
Sometimes I feel like the odd one out, restricted by DBA. I just have to keep reminding myself that God wouldn’t bless me with this challenge if He didn’t think I could handle it. I don’t let DBA define me, I try to defy DBA.
Never give up on something that you can’t go a day without thinking about.
We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?
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