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for patients…for families…for research

Abby – 6 years

DBA is a part of who I am… it does not define me nor will it stand in the way of my hopes and dreams.

Alexandre – 9 months

Amelia - DBA Foundation

Amelia – 8 years

The DBAF has been a life saver for us!  They’ve supplied us with the knowledge and the resources to fight off anything DBA might throw at us.

Anders - DBA Foundation

Anders – 5 years

Keep on Keepin’ On!

Angus – 4 years

Our greatest inspiration!

Ashlynn – 4 years

Of all the people on earth, the Lord your God has chosen you to be his own special treasure. -Deuteronomy 7:6

Audrey - DBA Foundation

Audrey – 4 years

Living with DBA is the hardest, yet most fulfilling, aspect of our lives. Audrey is the absolute love of our lives and we are thankful everyday for her.

Avari – 22 months

Thank you DBAF for being there for us as we continue on this journey.

Bailey – 4 years

This DBA family is the greatest group of people that I never wanted to have to know, but blessed that I do. The support from the DBA Foundation is immeasurable.

Brandy – 27 years

I stand DBA Strong with the help of my family, friends, and DBA friends.

Brian – 10 months

I am and always will be special. I am and always will be DBA Strong!

Brooke – 7 years

Caitlyn – 9 years

DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.

Carlee Nina – 4 months

“In His hand is the life of every creature and the breath of all mankind.” ~ Job 12:10

Carole – 16 years

Sometimes I feel like the odd one out, restricted by DBA. I just have to keep reminding myself that God wouldn’t bless me with this challenge if He didn’t think I could handle it. I don’t let DBA define me, I try to defy DBA.

Cole – 2 years

While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.

Corey & Tessa Ann – 27 years & 10 months

Living everyday to fight DBA

David – 1 month(now 12 years)

This is David at 1 month old weighing almost 2 pounds. DBA changed our paths in life, but I will ALWAYS be there to hold his hand for he holds my heart.

Dawson – 2 years

He’s living on borrowed blood and we take one day at a time.

Dean – 11 years

DBA is hard but it’s my child’s life. I have to teach him how to live life with it. I will advocate and help find a cure. The DBAF is helping us improve his life.

Diana – 28 years

I will not let DBA define me, I will let it strengthen me.

Drew – 2 years

Good things come in small packages! I may be little, but I’m a fighter – DBA… no contest.

Elton – 2 years

As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.

Emmalynn – 3 years

Living with DBA has had its ups and downs, but with all the love and support we have gotten from our family and friends, we have been able to provide our daughter with the best life possible.

Finn – 5 years

Gabriel – 7 years

We hope for an easier life, until then we are grateful for each day together.

Gary & Zac – 30 years, 5 years

Some days are good, others not so good. Please help find a cure for our family.

Grace – 8 years

“We are only as strong as we are united, as weak as we are divided.” – JK Rowling
Please come together and help find a cure for DBA.

Hunter – 4 years

Donate blood and stem cells, save a life!!!

Irelynn – 2 years

For Research, For Hope – Commited to helping find a cure for Diamond Blackfan Anemia – Give life, Donate blood.

Jack – 3 years

DBA has forever changed our lives, but we will persevere until we find a cure.

Jack – 3 years

DBA is tough, but thankfully so is Jack. Praying for a cure.

James Thomas – 3 years

Never give up on something that you can’t go a day without thinking about.

Jamie – 7 years

This is Jamie…Jamie is 7 years old, from the U.K… and he has DBA…. he’s brave, he’s strong, and above all, he’s always smiling.

Jason – 42 years

I AM DBA STRONG…Take Charge of your DBA!

Jensen – 4 years

Living with DBA is challenging and confusing at times but with the DBAF by your side their information and guidance is PRICELESS.

Jim – 35 years old

Justin – 5 years

Katie – 3 years

Our little hero

Katie – 9 years

DBAF continue to search for a cure for all DBA.

Keegan – 2 years

We are not the first to say this and we will not be the last, the DBAF has saved our child’s life. I cringe at the thought of what her care would be had we not met the DBAF.

Kellan – 22 months

Our son has truly changed our perspective on everything.

Kendra – 34 years

With out the DBAF I would not be connected to others that have Diamond Blackfan Anemia. The DBAF has saved my life by educating me on what I need to do to combat this rare illness.

Kristin – 25 years

Having DBA has taught me to not give up the fight and to do the best that I can. The DBAF has become more than just a source of friends and knowledge, but a family of support through the bad and the good.

Lane – 12 years

Same journey, different paths. Bound together by the same heartaches, triumphs, and hope for a cure. That’s DBA Family!

Liam – 5 months

Nobody is guaranteed tomorrow. Just because you have a warning doesn’t make you different than anyone else. It doesn’t make a difference in how you live each day.

Lily – 10 years

Lily loves everyday she has, especially the ones she’s not in the hospital. Lily is the strongest little girl I know, my hero.

Lola – 5 years

“Out of difficulties grow miracles.” – Jean de La Breyere

Lydia – 6 years

Maddy – 17 years

Difficulties are meant to rouse, not discourage. The human spirit is to grow strong by conflict. – William E. Channing

Maggie – 4 years

It’s not fun, but I am a tough cookie.

Matteo – 2 years

Living with DBA teaches you to enjoy the moment.

McKindree – 14 years

And when the storm is over, you won’t remember how you made it through or how you managed to survive. You won’t even be sure, in fact, whether the storm is really over. BUT…one thing is certain: When you come out of the storm, you won’t be the same person who walked in!

Michael & Andrew – 13 years

Having twin boys with DBA makes you appreciate everything in life more on a daily basis.

Mike – 32 years, Alice – 4 years

Natalie – 9 years

I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey

Nathaniel – 7 years

With something so rare, our biggest fear was that our son would battle DBA alone, he never does. Thank you DBA Foundation!

Nicholas – 18 years

DBA has taught us many things – Never give up – Be grateful for the strength to fight the fight and always cherish the arms we rest upon for support.

Pascal – 11 Years

It has been seven years since DBA became part of our vocabulary. Our son’s diagnosis brought confusion, apprehension and despair. The discovery of DBAF is a stroke of serendipity. While even more tears were shed, these are now mingled with knowledge, understanding and, more significantly, hope. It will be through research that our son will be able to secure a brighter future.

Peyton – 6 years

I cheer for a cure for DBA!

Raegan – 4 years

Thankfully, our sweet girl functions very well with a low blood count. We couldn’t feel more blessed. There is hope!

Sam – 6 years

Future ribosomal protein researcher…he just doesn’t know it yet.

Samnang – 3 years

After finally getting the right diagnosis, Samnang is surviving and thriving in Cambodia.

Sarah – 33 years

Seth – 4 years

Though in our hearts we desire to be free from DBA, we have learned patience, love, trust, perseverance, compassion, courage, and to cry.

Shelly – 48 years

Out of my way DBA!

Ty – 16 years

It is the tough things I have gone through with DBA that has made me the man I am.

Yashar – 15 years

For me, DBA has blocked the path to my goal. To get there, I’ll have to fight it and one day, I will reach that goal because I didn’t give up!

YouKai (Stephen) – 5 years

We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?