Lily loves everyday she has, especially the ones she’s not in the hospital. Lily is the strongest little girl I know, my hero.

Living with DBA is challenging and confusing at times but with the DBAF by your side their information and guidance is PRICELESS.

I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey

It has been seven years since DBA became part of our vocabulary. Our son’s diagnosis brought confusion, apprehension and despair. The discovery of DBAF is a stroke of serendipity. While even more tears were shed, these are now mingled with knowledge, understanding and, more significantly, hope. It will be through research that our son will be able to secure a brighter future.

While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.

I AM DBA STRONG…Take Charge of your DBA!