Tag Archives: The Feinstein Institute for Medical Research

DBA Gene Therapy Research Funded by DBAF & DBAC

The Diamond Blackfan Anemia Foundation is proud to partner with DBA Canada to fund a novel gene therapy research proposal from Dr. Johnson Liu, MD at The Feinstein Institute for Medical Research. The $48,210 project is titled, “Repairing Dominant Negative Mutation of RPS19 Gene by Spliceosome-Mediated RNA Trans-Splicing.” This approach takes advantage of the fact that human genes are made Continue Reading »

Written on December 26, 2013 at 7:48 pm, by Dawn

2 Comments

Categories: News, Research, Spotlight Stories

Tags: DBA, DBA Foundation, Diamond Blackfan Anemia, Diamond Blackfan Anemia Foundation, Johnson Liu, Research, The Feinstein Institute for Medical Research

News & Events

Sarah – 33 years

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Nicholas – 18 years

DBA has taught us many things – Never give up – Be grateful for the strength to fight the fight and always cherish the arms we rest upon for support.

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Diana – 28 years

I will not let DBA define me, I will let it strengthen me.

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Caitlyn – 9 years

DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.

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Elton – 2 years

As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.

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Cole – 2 years

While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.

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