The DBA Foundation is excited to announce the funding of Dr. George Thomas’ research project entitled, “The role of p53 in mediating the anemic response in DBA patients with defects in RPL5 or RPL11.” Thank you to DBA Canada for their joint funding support to make this possible! The long-term goal of this study is to understand the mechanisms through Continue Reading »
We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?
It has been seven years since DBA became part of our vocabulary. Our son’s diagnosis brought confusion, apprehension and despair. The discovery of DBAF is a stroke of serendipity. While even more tears were shed, these are now mingled with knowledge, understanding and, more significantly, hope. It will be through research that our son will be able to secure a brighter future.
Nobody is guaranteed tomorrow. Just because you have a warning doesn’t make you different than anyone else. It doesn’t make a difference in how you live each day.
It is the tough things I have gone through with DBA that has made me the man I am.
