Having DBA has taught me to not give up the fight and to do the best that I can. The DBAF has become more than just a source of friends and knowledge, but a family of support through the bad and the good.

This is David at 1 month old weighing almost 2 pounds. DBA changed our paths in life, but I will ALWAYS be there to hold his hand for he holds my heart.

I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey

Future ribosomal protein researcher…he just doesn’t know it yet.

Living with DBA teaches you to enjoy the moment.

We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?

I am and always will be special. I am and always will be DBA Strong!

DBA is tough, but thankfully so is Jack. Praying for a cure.

Out of my way DBA!

And when the storm is over, you won’t remember how you made it through or how you managed to survive. You won’t even be sure, in fact, whether the storm is really over. BUT…one thing is certain: When you come out of the storm, you won’t be the same person who walked in!