“We are only as strong as we are united, as weak as we are divided.” – JK Rowling
Please come together and help find a cure for DBA.

This is Jamie…Jamie is 7 years old, from the U.K… and he has DBA…. he’s brave, he’s strong, and above all, he’s always smiling.

And when the storm is over, you won’t remember how you made it through or how you managed to survive. You won’t even be sure, in fact, whether the storm is really over. BUT…one thing is certain: When you come out of the storm, you won’t be the same person who walked in!

While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.

It has been seven years since DBA became part of our vocabulary. Our son’s diagnosis brought confusion, apprehension and despair. The discovery of DBAF is a stroke of serendipity. While even more tears were shed, these are now mingled with knowledge, understanding and, more significantly, hope. It will be through research that our son will be able to secure a brighter future.

Having twin boys with DBA makes you appreciate everything in life more on a daily basis.

Sometimes I feel like the odd one out, restricted by DBA. I just have to keep reminding myself that God wouldn’t bless me with this challenge if He didn’t think I could handle it. I don’t let DBA define me, I try to defy DBA.

Same journey, different paths. Bound together by the same heartaches, triumphs, and hope for a cure. That’s DBA Family!