This is Jamie…Jamie is 7 years old, from the U.K… and he has DBA…. he’s brave, he’s strong, and above all, he’s always smiling.

I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey

Living with DBA teaches you to enjoy the moment.

Future ribosomal protein researcher…he just doesn’t know it yet.

While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.

This DBA family is the greatest group of people that I never wanted to have to know, but blessed that I do. The support from the DBA Foundation is immeasurable.

DBA has taught us many things – Never give up – Be grateful for the strength to fight the fight and always cherish the arms we rest upon for support.

He’s living on borrowed blood and we take one day at a time.

DBAF continue to search for a cure for all DBA.

DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.