Sometimes I feel like the odd one out, restricted by DBA. I just have to keep reminding myself that God wouldn’t bless me with this challenge if He didn’t think I could handle it. I don’t let DBA define me, I try to defy DBA.

Some days are good, others not so good. Please help find a cure for our family.

Future ribosomal protein researcher…he just doesn’t know it yet.

For Research, For Hope – Commited to helping find a cure for Diamond Blackfan Anemia – Give life, Donate blood.

The DBAF has been a life saver for us!  They’ve supplied us with the knowledge and the resources to fight off anything DBA might throw at us.

DBA is hard but it’s my child’s life. I have to teach him how to live life with it. I will advocate and help find a cure. The DBAF is helping us improve his life.

Having DBA has taught me to not give up the fight and to do the best that I can. The DBAF has become more than just a source of friends and knowledge, but a family of support through the bad and the good.

And when the storm is over, you won’t remember how you made it through or how you managed to survive. You won’t even be sure, in fact, whether the storm is really over. BUT…one thing is certain: When you come out of the storm, you won’t be the same person who walked in!

He’s living on borrowed blood and we take one day at a time.

We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?