I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey
Tag Archives: International Consensus Conference
DBAF Hosts 14th DBA International Consensus Conference in Atlanta, GA
The 14th Diamond Blackfan Anemia International Consensus Conference was a huge success. It is a privilege to continue the meeting founded and previously sponsored by Marie Arturi and the Daniella Maria Arturi Foundation. The DBA Foundation is grateful for the support of DBA Canada, the Daniella Maria Arturi Foundation, DBA-UK, Captain Courageous (Australia) and the Resource Capital Funds Foundation. The cooperation Continue Reading »
“Life with DBA” by Laurie Shore, DBA speaker at the 14th DBA International Consensus Conference
When I was diagnosed with Diamond Blackfan Anemia back in 1970, I was lucky enough to have a doctor that knew about DBA and knew what he was dealing with. I was put on a course of treatment and throughout the years, the doctors did what they could. But having DBA was a very isolating experience for my mom and my dad Continue Reading »
Welcome and thank you. Christopher Vroman’s Story shared at the 14th DBA International Consensus Conference
It means more than you could ever imagine to myself, my brother and to the rest of my family that you have come here to collaborate with great minds in order to work towards a cure for DBA. As some of you may already know, I was diagnosed with DBA when I was seven weeks old, and I have never Continue Reading »
Summary of the 2014 International Consensus Conference from DBAF’s Research Director, Steven Ellis, PhD:
The 13th Diamond Blackfan Anemia International Consensus Conference was held March 8th through the 10th at the Ritz-Carlton Hotel in downtown Atlanta, Georgia. This year’s conference saw a record number of abstracts accepted for presentation as either short talks or posters. This increased number of abstracts submitted relative to previous years, in part, reflects an increasing number of investigators entering Continue Reading »
DBA International Clinical Care Consensus Document (2008)
Through the coordination of international experts in DBA at the annual International Consensus Conference (ICC) sponsored by the Daniella Maria Arturi Foundation and Co-sponsored by the Diamond Blackfan Anemia Foundation we share with you this Clinical Care Consensus Document, which has been published in the British Journal of Haematology and offers the latest opinions on how to diagnose and manage Continue Reading »
