Living with DBA is the hardest, yet most fulfilling, aspect of our lives. Audrey is the absolute love of our lives and we are thankful everyday for her.
Tag Archives: ICC
The 14th Diamond Blackfan Anemia International Consensus Conference was a huge success. It is a privilege to continue the meeting founded and previously sponsored by Marie Arturi and the Daniella Maria Arturi Foundation. The DBA Foundation is grateful for the support of DBA Canada, the Daniella Maria Arturi Foundation, DBA-UK, Captain Courageous (Australia) and the Resource Capital Funds Foundation. The cooperation Continue Reading »
When I was diagnosed with Diamond Blackfan Anemia back in 1970, I was lucky enough to have a doctor that knew about DBA and knew what he was dealing with. I was put on a course of treatment and throughout the years, the doctors did what they could. But having DBA was a very isolating experience for my mom and my dad Continue Reading »
Welcome and thank you. Christopher Vroman’s Story shared at the 14th DBA International Consensus Conference
It means more than you could ever imagine to myself, my brother and to the rest of my family that you have come here to collaborate with great minds in order to work towards a cure for DBA. As some of you may already know, I was diagnosed with DBA when I was seven weeks old, and I have never Continue Reading »
Summary of the 2014 International Consensus Conference from DBAF’s Research Director, Steven Ellis, PhD:
The 13th Diamond Blackfan Anemia International Consensus Conference was held March 8th through the 10th at the Ritz-Carlton Hotel in downtown Atlanta, Georgia. This year’s conference saw a record number of abstracts accepted for presentation as either short talks or posters. This increased number of abstracts submitted relative to previous years, in part, reflects an increasing number of investigators entering Continue Reading »