The DBAF has been a life saver for us!  They’ve supplied us with the knowledge and the resources to fight off anything DBA might throw at us.

Never give up on something that you can’t go a day without thinking about.

I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey

With something so rare, our biggest fear was that our son would battle DBA alone, he never does. Thank you DBA Foundation!

Lily loves everyday she has, especially the ones she’s not in the hospital. Lily is the strongest little girl I know, my hero.

I cheer for a cure for DBA!

Our son has truly changed our perspective on everything.

Thankfully, our sweet girl functions very well with a low blood count. We couldn’t feel more blessed. There is hope!