Living with DBA is challenging and confusing at times but with the DBAF by your side their information and guidance is PRICELESS.

Our son has truly changed our perspective on everything.

This is Jamie…Jamie is 7 years old, from the U.K… and he has DBA…. he’s brave, he’s strong, and above all, he’s always smiling.

It’s not fun, but I am a tough cookie.

Living everyday to fight DBA

With something so rare, our biggest fear was that our son would battle DBA alone, he never does. Thank you DBA Foundation!

We are not the first to say this and we will not be the last, the DBAF has saved our child’s life. I cringe at the thought of what her care would be had we not met the DBAF.

I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey

And when the storm is over, you won’t remember how you made it through or how you managed to survive. You won’t even be sure, in fact, whether the storm is really over. BUT…one thing is certain: When you come out of the storm, you won’t be the same person who walked in!

Living with DBA teaches you to enjoy the moment.