Never give up on something that you can’t go a day without thinking about.

We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?

Living with DBA is challenging and confusing at times but with the DBAF by your side their information and guidance is PRICELESS.

It’s not fun, but I am a tough cookie.

I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey

DBAF continue to search for a cure for all DBA.

With out the DBAF I would not be connected to others that have Diamond Blackfan Anemia. The DBAF has saved my life by educating me on what I need to do to combat this rare illness.

Sometimes I feel like the odd one out, restricted by DBA. I just have to keep reminding myself that God wouldn’t bless me with this challenge if He didn’t think I could handle it. I don’t let DBA define me, I try to defy DBA.

DBA is hard but it’s my child’s life. I have to teach him how to live life with it. I will advocate and help find a cure. The DBAF is helping us improve his life.

He’s living on borrowed blood and we take one day at a time.