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Tag Archives: Diamond Blackfan Anemia Registry

Clinical Trial Opportunity

We are pleased to share and update information regarding the clinical trial entitled, “Phase I/II, Open-Label Study to Determine Safety of Trifluoperazine (TFP) in Adults with Red Blood Cell Transfusion-Dependent Diamond Blackfan Anemia.” The Feinstein Institutes for Medical Research and Cohen Children’s Medical Center in NYC Announce the Addition of Boston Children’s Hospital as a Study Center for the Clinical  Continue Reading »

New Information & Recommendation Regarding Increased Cancer Risks

In June 2021, a “Special Report” entitled, Colorectal cancer screening and surveillance strategy for patients with Diamond Blackfan anemia: Preliminary recommendations from the Diamond Blackfan Anemia Registry was published in Pediatric Blood & Cancer. At this time, the abstract is available for free and full access to the article is available only through paid subscriptions or institutional access. In addition  Continue Reading »