This is David at 1 month old weighing almost 2 pounds. DBA changed our paths in life, but I will ALWAYS be there to hold his hand for he holds my heart.
Tag Archives: Diamond Blackfan Anemia Registry
We are pleased to share and update information regarding the clinical trial entitled, “Phase I/II, Open-Label Study to Determine Safety of Trifluoperazine (TFP) in Adults with Red Blood Cell Transfusion-Dependent Diamond Blackfan Anemia.” The Feinstein Institutes for Medical Research and Cohen Children’s Medical Center in NYC Announce the Addition of Boston Children’s Hospital as a Study Center for the Clinical Continue Reading »
In June 2021, a “Special Report” entitled, Colorectal cancer screening and surveillance strategy for patients with Diamond Blackfan anemia: Preliminary recommendations from the Diamond Blackfan Anemia Registry was published in Pediatric Blood & Cancer. At this time, the abstract is available for free and full access to the article is available only through paid subscriptions or institutional access. In addition Continue Reading »