Thankfully, our sweet girl functions very well with a low blood count. We couldn’t feel more blessed. There is hope!

I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey

It’s not fun, but I am a tough cookie.

Our little hero

As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.

“In His hand is the life of every creature and the breath of all mankind.” ~ Job 12:10

I cheer for a cure for DBA!

Keep on Keepin’ On!