It’s not fun, but I am a tough cookie.

He’s living on borrowed blood and we take one day at a time.

I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey

While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.

Thank you DBAF for being there for us as we continue on this journey.

“In His hand is the life of every creature and the breath of all mankind.” ~ Job 12:10

DBA is a part of who I am… it does not define me nor will it stand in the way of my hopes and dreams.

DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.

I AM DBA STRONG…Take Charge of your DBA!