This is Jamie…Jamie is 7 years old, from the U.K… and he has DBA…. he’s brave, he’s strong, and above all, he’s always smiling.

DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.

Some days are good, others not so good. Please help find a cure for our family.

Of all the people on earth, the Lord your God has chosen you to be his own special treasure. -Deuteronomy 7:6

DBA is tough, but thankfully so is Jack. Praying for a cure.

It has been seven years since DBA became part of our vocabulary. Our son’s diagnosis brought confusion, apprehension and despair. The discovery of DBAF is a stroke of serendipity. While even more tears were shed, these are now mingled with knowledge, understanding and, more significantly, hope. It will be through research that our son will be able to secure a brighter future.

Living with DBA teaches you to enjoy the moment.

Thankfully, our sweet girl functions very well with a low blood count. We couldn’t feel more blessed. There is hope!

We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?