Sometimes I feel like the odd one out, restricted by DBA. I just have to keep reminding myself that God wouldn’t bless me with this challenge if He didn’t think I could handle it. I don’t let DBA define me, I try to defy DBA.

We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?

DBA is a part of who I am… it does not define me nor will it stand in the way of my hopes and dreams.

For me, DBA has blocked the path to my goal. To get there, I’ll have to fight it and one day, I will reach that goal because I didn’t give up!

We are not the first to say this and we will not be the last, the DBAF has saved our child’s life. I cringe at the thought of what her care would be had we not met the DBAF.

Living with DBA teaches you to enjoy the moment.

“Out of difficulties grow miracles.” – Jean de La Breyere

Lily loves everyday she has, especially the ones she’s not in the hospital. Lily is the strongest little girl I know, my hero.