Rolling for Robert in Support of DBA
October 27, 2012
5:30 – 7:30pm
Scooter’s Rolling Place
Mississauga, Ontario
Contact: Paula Bourgeois
pizster27@gmail.com
For more information, please click here.
Thanks Bourgeoiss!
With out the DBAF I would not be connected to others that have Diamond Blackfan Anemia. The DBAF has saved my life by educating me on what I need to do to combat this rare illness.
I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey
Never give up on something that you can’t go a day without thinking about.
As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.
We hope for an easier life, until then we are grateful for each day together.
DBA has forever changed our lives, but we will persevere until we find a cure.
With something so rare, our biggest fear was that our son would battle DBA alone, he never does. Thank you DBA Foundation!
Sometimes I feel like the odd one out, restricted by DBA. I just have to keep reminding myself that God wouldn’t bless me with this challenge if He didn’t think I could handle it. I don’t let DBA define me, I try to defy DBA.
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