Funded To: Professor Gil Tchernia Project Title: Evaluation of metoclopramide efficacy and toxicity in Diamond-Blackfan Anemia patients.
Funded To: Dr. Niklas Dahl Project Title: Funded Identification of the molecular basis of Diamond-Blackfan Anemia and evaluation of RPS 19 gene transfer.
As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.
With out the DBAF I would not be connected to others that have Diamond Blackfan Anemia. The DBAF has saved my life by educating me on what I need to do to combat this rare illness.
Thank you DBAF for being there for us as we continue on this journey.
While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.
DBA has taught us many things – Never give up – Be grateful for the strength to fight the fight and always cherish the arms we rest upon for support.
Nobody is guaranteed tomorrow. Just because you have a warning doesn’t make you different than anyone else. It doesn’t make a difference in how you live each day.
Future ribosomal protein researcher…he just doesn’t know it yet.
Of all the people on earth, the Lord your God has chosen you to be his own special treasure. -Deuteronomy 7:6
