Funded To: Dr. Stefan Karlsson, Lund University, Lund, Sweden Project Title: Diamond-Blackfan Anemia Hematopoiesis and Gene Therapy.
Funded To: Dr. Niklas Dahl, Uppsala University Children’s Hospital, Sweden Project Title: Continuation of “Functional and therapeutic investigations of the ribosomal protein S19 in Diamond-Blackfan Anemia.”
As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.
We hope for an easier life, until then we are grateful for each day together.
I am and always will be special. I am and always will be DBA Strong!
Thankfully, our sweet girl functions very well with a low blood count. We couldn’t feel more blessed. There is hope!
We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?
