Funded To: Dr. Stefan Karlsson, Lund University, Lund, Sweden Project Title: Diamond-Blackfan Anemia Hematopoiesis and Gene Therapy.
Funded To: Dr. Niklas Dahl, Uppsala University Children’s Hospital, Sweden Project Title: Continuation of “Functional and therapeutic investigations of the ribosomal protein S19 in Diamond-Blackfan Anemia.”
We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?
Difficulties are meant to rouse, not discourage. The human spirit is to grow strong by conflict. – William E. Channing
Living with DBA has had its ups and downs, but with all the love and support we have gotten from our family and friends, we have been able to provide our daughter with the best life possible.
“In His hand is the life of every creature and the breath of all mankind.” ~ Job 12:10
This DBA family is the greatest group of people that I never wanted to have to know, but blessed that I do. The support from the DBA Foundation is immeasurable.
Nobody is guaranteed tomorrow. Just because you have a warning doesn’t make you different than anyone else. It doesn’t make a difference in how you live each day.
DBA has forever changed our lives, but we will persevere until we find a cure.
