Funded To: Dr. Stefan Karlsson, Lund University, Lund, Sweden Project Title: Diamond-Blackfan Anemia Hematopoiesis and Gene Therapy.
Funded To: Dr. Niklas Dahl, Uppsala University Children’s Hospital, Sweden Project Title: Continuation of “Functional and therapeutic investigations of the ribosomal protein S19 in Diamond-Blackfan Anemia.”
I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey
We hope for an easier life, until then we are grateful for each day together.
DBA is a part of who I am… it does not define me nor will it stand in the way of my hopes and dreams.
Difficulties are meant to rouse, not discourage. The human spirit is to grow strong by conflict. – William E. Channing
Living with DBA has had its ups and downs, but with all the love and support we have gotten from our family and friends, we have been able to provide our daughter with the best life possible.
DBA has taught us many things – Never give up – Be grateful for the strength to fight the fight and always cherish the arms we rest upon for support.
I am and always will be special. I am and always will be DBA Strong!
