Funded To: Dr. Stefan Karlsson, Lund University, Lund, Sweden Project Title: Diamond-Blackfan Anemia Hematopoiesis and Gene Therapy.
Funded To: Dr. Niklas Dahl, Uppsala University Children’s Hospital, Sweden Project Title: Continuation of “Functional and therapeutic investigations of the ribosomal protein S19 in Diamond-Blackfan Anemia.”
I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey
This is David at 1 month old weighing almost 2 pounds. DBA changed our paths in life, but I will ALWAYS be there to hold his hand for he holds my heart.
It is the tough things I have gone through with DBA that has made me the man I am.
The DBAF has been a life saver for us! They’ve supplied us with the knowledge and the resources to fight off anything DBA might throw at us.
It has been seven years since DBA became part of our vocabulary. Our son’s diagnosis brought confusion, apprehension and despair. The discovery of DBAF is a stroke of serendipity. While even more tears were shed, these are now mingled with knowledge, understanding and, more significantly, hope. It will be through research that our son will be able to secure a brighter future.
DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.
Thankfully, our sweet girl functions very well with a low blood count. We couldn’t feel more blessed. There is hope!
