Funded To: Mount Sinai Hospital, Jeffrey M. Lipton, M.D., PhD. Project Title:” Diamond Blackfan Anemia Registry”.
Though in our hearts we desire to be free from DBA, we have learned patience, love, trust, perseverance, compassion, courage, and to cry.
This DBA family is the greatest group of people that I never wanted to have to know, but blessed that I do. The support from the DBA Foundation is immeasurable.
As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.
I am and always will be special. I am and always will be DBA Strong!
DBA has taught us many things – Never give up – Be grateful for the strength to fight the fight and always cherish the arms we rest upon for support.
DBA is a part of who I am… it does not define me nor will it stand in the way of my hopes and dreams.
Having twin boys with DBA makes you appreciate everything in life more on a daily basis.
