Skip to Content

for patients…for families…for research

Latest News & Events

Posted on: August 15, 2013

DBAF Funds a Novel Idea in Understanding DBA

The Diamond Blackfan Anemia Foundation (DBAF) is pleased to announce the funding of another exciting research project. Dr. Jingping Ge, MD, PhD was awarded a $30,000 grant for her project entitled, “Role of TGF-beta signaling in the pathogenesis of DBA.” Dr. Ge’s preliminary data reveal that TGF-beta inhibits the reprogramming of differentiated cells to induced pluripotent stem cells (iPSCs) and even  Continue Reading » Posted in: News, Research, Spotlight Stories
Posted on: August 12, 2013

Exciting New GATA1 Research Funded by DBAF and DBAC

The Diamond Blackfan Anemia Foundation (DBAF) and Diamond Blackfan Anemia Canada (DBAC) have once again joined forces to fund a very exciting research project. Dr. John Crispino, PhD of Northwestern University was awarded a $50,000 grant for his project entitled, “Overriding GATA1 mutations in Diamond Blackfan Anemia.” The DBAF appreciates DBAC’s $15,000 contribution towards this project and is grateful to  Continue Reading » Posted in: News, Research, Spotlight Stories
Posted on: June 12, 2013

Cohen Children’s Medical Center Announces Leucine Trial for Transfused DBA Patients

Dear DBA Patients and Families: We are pleased to announce the opening of: “The Use of Novel Therapies to Reconstitute Blood Cell Production and Promote Organ Performance, using Bone Marrow Failure as a Model: A Pilot, Phase II Study of the Amino Acid Leucine in the Treatment of Patients with Transfusion-Dependent Diamond Blackfan Anemia” Diamond Blackfan Anemia (DBA) is a  Continue Reading » Posted in: Clinical Trials, News, Research, Spotlight Stories
Posted on: June 12, 2013

Dr. Jeffrey Lipton Honored at National Cancer Center’s 60th Anniversary Gala and Nobility in Science Award Presentation

Please join us in congratulating one of DBA’s true heroes, Jeffrey M. Lipton, MD, PhD, Director, Hematology/Oncology and Stem Cell Transplantation at Cohen Children’s Medical Center of New York. On June 12, 2013, Dr. Lipton was honored by the National Cancer Center for his outstanding career of advancing science. His extensive research in hematology and stem cell transplantation has changed the  Continue Reading » Posted in: Families in the News, News
Posted on: June 10, 2013

Skin cells to blood cells, oh my! Breakthrough DBA Findings Published in BLOOD

Dr. Mitchell Weiss, Dr. Monica Bessler, Dr. Philip Mason and their entire team at The Children’s Hospital of Philadelphia have shown that skin cells from patients with DBA can be reprogrammed to produce blood cells. This breakthrough work is a step forward in understanding DBA and could lead to exciting new approaches in gene therapy and treatment options. For many years,  Continue Reading » Posted in: News, Research
Posted on: June 9, 2013

New Research Reveals Why Glucocorticoids Increase Red Cell Production in DBA

Dr. Harvey Lodish of the Whitehead Institute published new findings identifying a protein that is the target of prednisone or prednisolone, the drugs that are used to increase red blood cell production in some patients with Diamond Blackfan Anemia. The discovery could spur development of drugs capable of increasing this protein’s production without causing the severe side effects associated with  Continue Reading » Posted in: News, Research
Posted on: May 6, 2013

Congratulations to Stuart H. Orkin, MD

Congratulations to Stuart H. Orkin, MD, chairman of the department of pediatric oncology at Dana-Farber/Children’s Hospital Cancer Center. Dr. Orkin was recently awarded the Jessie Stevenson Kovalenko Medal from the National Academy of Sciences for his pioneering achievements in defining the molecular basis of blood disorders and the mechanisms governing the development of blood stem cells and individual blood lineages.  Continue Reading » Posted in: News, Research