Skip to Content

for patients…for families…for research

Latest News & Events

Posted on: April 30, 2015

DBAF and DBAC Fund Continuing Drug Development Research

The Diamond Blackfan Anemia Foundation (DBAF) and Diamond Blackfan Anemia Canada (DBAC) are joining forces once again to fund Johan Flygare, M.D., Ph.D.’s project entitled, “A novel group of kinase inhibitors for treatment of Diamond Blackfan Anemia.” The goal of this $35,000 project is to develop safer and more potent drugs to treat DBA. Ideally, these drugs would act by  Continue Reading » Posted in: News, Research, Spotlight Stories
Posted on: March 6, 2015

Camp Sunshine Applications Are Available Now!

The Diamond Blackfan Anemia Foundation (DBAF) is proud to announce our tenth national family retreat. This retreat will take place during the week of  July 12 – 17, 2015 at Camp Sunshine, which is located at Lake Sebago, Maine. Air carriers fly into Portland, Maine.  Ground transportation is provided by Camp Sunshine to the campus. Camp Sunshine has proven to be an unforgettable experience  Continue Reading » Posted in: Previous Events
Posted on: February 28, 2015

DBAF Funds Our “Indispensable Steve”

The Diamond Blackfan Anemia Foundation (DBAF)  is pleased to support the hard work and research efforts of Steven R. Ellis, Ph.D. at the University of Louisville. Dr. Steve Ellis’ professional and personal commitment to DBA is immeasurable and deeply appreciated. Not only is Steve our dedicated (and unpaid) Research Director, who is working tirelessly behind the scenes, he also writes the DBAF’s e-newsletter  Continue Reading » Posted in: News, Research, Spotlight Stories
Posted on: January 29, 2015

DBAF & DBA-UK Fund Another Researcher New to the DBA Field

The Diamond Blackfan Anemia Foundation (DBAF), in collaboration with DBA-UK, is pleased to announce funding for a project entitled, “Ribosome biogenesis, cellular signaling pathways and Diamond Blackfan anemia.” A $41,810 grant was awarded to Nicholas James Watkins, Ph.D, a senior lecturer in the Institute for Cellular and Molecular Biosciences at the University of Newcastle upon Tyne in the United Kingdom.  Continue Reading » Posted in: News, Research, Spotlight Stories
Posted on: January 26, 2015

DBAF Supports Ribosome Meeting

The Diamond Blackfan Anemia Foundation (DBAF) is proud to support the Ribosome Synthesis Meeting held tri-annually. This international meeting, celebrating its 10th anniversary, brings together investigators from all over the world to focus on issues related to ribosome synthesis. The 2015 EMBO Conference on Ribosome Assembly will be held at the Hotel Metropole in downtown Brussels from August 19-23, 2015. The meeting will focus  Continue Reading » Posted in: News, Research, Spotlight Stories, Upcoming Events
Posted on: September 29, 2014

DBAF Funds GATA1 Research

The Diamond Blackfan Anemia Foundation is proud to support the research of Dr. Shai Izraeli, Professor in the Department of Human Molecular Genetics and Biochemistry at Tel Aviv University and the Head of the Childhood Leukemia Research Institute within the Department of Pediatric Hematology/Oncology and the Cancer Research Center at Sheba Medical Center, Israel. The DBAF provided a $32,000 grant  Continue Reading » Posted in: Misc, News, Research, Spotlight Stories
Posted on: September 13, 2014

DBA Sweatshirt Available

DBA Awareness Sweatshirts are available for a very limited time. Stay warm and cozy this winter in your DBA hoodie. Many thanks to David and Brandi Voltz of Bonaire, GA for initiating this fundraiser benefiting the DBA Foundation. Available in youth and adult sizes. Start your holiday shopping! Don’t miss out, order yours today! Thank you for your continued support.  Continue Reading » Posted in: Misc
Posted on: September 13, 2014

“DBA: Building Global Bridges” Euro-DBA consortium

ANNOUNCEMENT: “DBA: Building Global Bridges”: An interdisciplinary symposium to facilitate networking between clinicians, scientists, and patients worldwide. An international meeting on Diamond-Blackfan anemia (DBA), a rare inherited blood disease will take place at the Division of Pediatrics, University of Freiburg in Germany, on September 19-20, 2014. “DBA: Building Global Bridges” is an interdisciplinary symposium established under the umbrella of the ERARE-funded  Continue Reading » Posted in: Misc, News, Spotlight Stories, Upcoming Events
Posted on: August 31, 2014

DBAF & DBAC Fund Drug Screening Project

The Diamond Blackfan Anemia Foundation (DBAF), in partnership with DBA Canada (DBAC), is proud to provide a $25,000 grant to Dr. David Bodine for his project, Assay Development and Preliminary Screening of Small Molecules to Increase Ribosomal Protein Levels. David Bodine, PhD, Senior Investigator and Chief, Genetics and Molecular Biology Branch Head, Hematopoiesis Section of the National Human Genome Research Institute explained, “The vast  Continue Reading » Posted in: News, Research
Posted on: August 28, 2014

DBAF Board Member Appointed As Reviewer

Congress has again made funds available to the Department of Defense (DOD) for the Bone Marrow Failure Research Program (BMFRP). The DOD, in turn, is making funds available to scientists around the world with the vision of understanding and curing bone marrow failure diseases. Researchers apply to DOD for support of their research and for research training by submitting an  Continue Reading » Posted in: Families in the News, News, Spotlight Stories