Posted on: April 9, 2021
We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?
Latest News & Events
Posted on: April 14, 2020
Dr. Adrianna Vlachos Answers Your COVID-19 Questions
On Saturday, April 11, the Diamond Blackfan Anemia Foundation (DBAF) welcomed Dr. Adrianna Vlachos, Director of the North American DBA Registry (DBAR), to address COVID-19 concerns of the DBA Community. If you were not able to join, or would like to review the information, the video is available below and also on Facebook and YouTube. Facebook: https://www.facebook.com/dbafoundation/ YouTube: https://www.youtube.com/watch?v=-Syyf43JIKM We Continue Reading »
Posted on: January 14, 2019
Camp Sunshine Applications are Available Now!
The Diamond Blackfan Anemia Foundation (DBAF) is proud to announce our 12th national family retreat. This retreat will take place during the week of July 7 – 12, 2019 at Camp Sunshine, which is located at Lake Sebago, Maine. Air carriers fly into Portland, Maine. Ground transportation is provided by Camp Sunshine to the campus. Camp Sunshine has proven to be an unforgettable experience Continue Reading »
Posted on: April 9, 2018
Response to People Magazine’s Article
As the Executive Director of the Diamond Blackfan Anemia Foundation (DBAF), it is both my professional responsibility and personal passion to fulfill the DBAF’s Mission Statement: The mission of the Diamond Blackfan Anemia Foundation is to advance research initiatives that promote a better understanding, therapeutic strategies and a cure for this rare bone marrow failure syndrome. We are dedicated to Continue Reading »
Posted on: August 14, 2017
Camp Sunshine 2017 Recap
Oh… Camp Sunshine… we are so very grateful! Through the generosity and compassion of our friends at Camp Sunshine, DBA families and patients from around the world met in Casco, Maine from July 9-14, 2017. Our eleventh family meeting was a huge success! As presentations are received and approved by the presenters, they will be posted to our website here: https://dbafoundation.org/families/camp-sunshine/
Posted on: January 9, 2017
Camp Sunshine Applications Are Available Now!
The Diamond Blackfan Anemia Foundation (DBAF) is proud to announce our 11th national family retreat. This retreat will take place during the week of July 9 – 14, 2017 at Camp Sunshine, which is located at Lake Sebago, Maine. Air carriers fly into Portland, Maine. Ground transportation is provided by Camp Sunshine to the campus. Camp Sunshine has proven to be an unforgettable experience Continue Reading »
Posted on: August 26, 2016
DBAF Hosts 14th DBA International Consensus Conference in Atlanta, GA
The 14th Diamond Blackfan Anemia International Consensus Conference was a huge success. It is a privilege to continue the meeting founded and previously sponsored by Marie Arturi and the Daniella Maria Arturi Foundation. The DBA Foundation is grateful for the support of DBA Canada, the Daniella Maria Arturi Foundation, DBA-UK, Captain Courageous (Australia) and the Resource Capital Funds Foundation. The cooperation Continue Reading »
Posted on: August 26, 2016
“Life with DBA” by Laurie Shore, DBA speaker at the 14th DBA International Consensus Conference
When I was diagnosed with Diamond Blackfan Anemia back in 1970, I was lucky enough to have a doctor that knew about DBA and knew what he was dealing with. I was put on a course of treatment and throughout the years, the doctors did what they could. But having DBA was a very isolating experience for my mom and my dad Continue Reading »
Posted on: August 26, 2016
Welcome and thank you. Christopher Vroman’s Story shared at the 14th DBA International Consensus Conference
It means more than you could ever imagine to myself, my brother and to the rest of my family that you have come here to collaborate with great minds in order to work towards a cure for DBA. As some of you may already know, I was diagnosed with DBA when I was seven weeks old, and I have never Continue Reading »
Posted on: September 14, 2015
