Posted on: January 14, 2019
Good things come in small packages! I may be little, but I’m a fighter – DBA… no contest.
Latest News & Events
Posted on: April 9, 2018
Response to People Magazine’s Article
As the Executive Director of the Diamond Blackfan Anemia Foundation (DBAF), it is both my professional responsibility and personal passion to fulfill the DBAF’s Mission Statement: The mission of the Diamond Blackfan Anemia Foundation is to advance research initiatives that promote a better understanding, therapeutic strategies and a cure for this rare bone marrow failure syndrome. We are dedicated to Continue Reading »
Posted on: August 14, 2017
Camp Sunshine 2017 Recap
Oh… Camp Sunshine… we are so very grateful! Through the generosity and compassion of our friends at Camp Sunshine, DBA families and patients from around the world met in Casco, Maine from July 9-14, 2017. Our eleventh family meeting was a huge success! As presentations are received and approved by the presenters, they will be posted to our website here: https://dbafoundation.org/families/camp-sunshine/
Posted on: January 9, 2017
Camp Sunshine Applications Are Available Now!
The Diamond Blackfan Anemia Foundation (DBAF) is proud to announce our 11th national family retreat. This retreat will take place during the week of July 9 – 14, 2017 at Camp Sunshine, which is located at Lake Sebago, Maine. Air carriers fly into Portland, Maine. Ground transportation is provided by Camp Sunshine to the campus. Camp Sunshine has proven to be an unforgettable experience Continue Reading »
Posted on: August 26, 2016
DBAF Hosts 14th DBA International Consensus Conference in Atlanta, GA
The 14th Diamond Blackfan Anemia International Consensus Conference was a huge success. It is a privilege to continue the meeting founded and previously sponsored by Marie Arturi and the Daniella Maria Arturi Foundation. The DBA Foundation is grateful for the support of DBA Canada, the Daniella Maria Arturi Foundation, DBA-UK, Captain Courageous (Australia) and the Resource Capital Funds Foundation. The cooperation Continue Reading »
Posted on: August 26, 2016
“Life with DBA” by Laurie Shore, DBA speaker at the 14th DBA International Consensus Conference
When I was diagnosed with Diamond Blackfan Anemia back in 1970, I was lucky enough to have a doctor that knew about DBA and knew what he was dealing with. I was put on a course of treatment and throughout the years, the doctors did what they could. But having DBA was a very isolating experience for my mom and my dad Continue Reading »
Posted on: August 26, 2016
Welcome and thank you. Christopher Vroman’s Story shared at the 14th DBA International Consensus Conference
It means more than you could ever imagine to myself, my brother and to the rest of my family that you have come here to collaborate with great minds in order to work towards a cure for DBA. As some of you may already know, I was diagnosed with DBA when I was seven weeks old, and I have never Continue Reading »
Posted on: September 14, 2015
DBAF provides Sponsorship for Conference on Ribosome Synthesis
By: Steven R. Ellis, Ph.D. Dateline: August 21st 2015, Brussels Belgium Ding…………….that’s odd, it is 3:00AM back in the US: who would be e-mailing me now? Ah, it’s Jeff Lipton; who happens to be sitting immediately in front of me listening to a talk at the 10th triennial Conference on Ribosome Synthesis. The e-mail is sent to all members of Continue Reading »
Posted on: September 2, 2015
A Clinician/Researcher’s Perspective… Camp Sunshine 2015
By Vijay G. Sankaran, M.D., Ph.D. As both a pediatric hematologist caring for patients with blood disorders and a scientist working to improve our understanding of the genetic basis of these diseases, I spend a large fraction of my time thinking about Diamond Blackfan anemia (DBA). However, while I have always found DBA to be a fascinating disease to study Continue Reading »
Posted on: July 31, 2015
