In June 2021, a “Special Report” entitled, Colorectal cancer screening and surveillance strategy for patients with Diamond Blackfan anemia: Preliminary recommendations from the Diamond Blackfan Anemia Registry was published in Pediatric Blood & Cancer.
At this time, the abstract is available for free and full access to the article is available only through paid subscriptions or institutional access. In addition to the abstract, the Diamond Blackfan Anemia Registry doctors have provided a letter outlining the key points of the “Special Report.”
To read this important letter, Please click the link: Colonoscopy Recommendations for DBA Patients
We are grateful for our generous donors. The Diamond Blackfan Anemia Foundation is proud to provide funding for the Diamond Blackfan Anemia Registry’s (DBAR) important initiatives. A big thank you to the team at the DBAR and all our patients who have enrolled. Your data is needed and appreciated to keep the registry robust and informative.